I was honored to be asked to speak at Mayo Clinic last week regarding
pediatric proton therapy and the obstacles parents face. It was hard not to be impressed upon arrival
to Rochester as Mayo Clinic and its affiliates seem to occupy most of the
downtown. With some 35,000 employees the
town is a hustle and bustle of medical professionals and patients. The underground Subway system that is not a
mechanical subway, but rather a collection of underground walkways, restaurants
and shops allows you to go from most downtown hotels to the clinic without ever
going outside or needing a car. When I
walked around town, there were numerous restaurants and activities within close
distance of the clinic. I saw people from all over the world and I
thought how lucky are we to have great medical care right here in Rochester, Minnesota. Being a huge Steelers fan, I tried to ignore
the town’s obsession with the Vikings – though a good rivalry.
I commend Mayo proton
for preparing to treat pediatrics and having the guts to hear from a person
like me how hard work it is. So with the
latest in technology, we were able to broadcast my slides and myself all the
way to Phoenix and other parts of the center.
My main message included parents (many nontraditional) being high
maintenance and the cancer children coming with siblings, grandparents and a lot
of other challenges. I spoke a lot
about insurance challenges and what a disaster it is that insurers often hinder
a child from receiving proton therapy.
I then got to tour the new proton center! There was a lot of excitement because the beam
was going live that day. I loved the
design, very bright and crisp, with keeping in mind workflow and efficiency
with anesthesia prep and recovery. All
my hosts listened with open ears as I commented from my standpoint. I just
know parents and the kids are loungers and take more space then really necessary
(maybe there is something about controlling the corner of a waiting room.) I wished my best idea wasn’t a new slushie
machine, though I can’t imagine anything more fun for a kid coming out of
anesthesia or for that matter a grumpy adult.
I had a chance to talk to many different groups that will be caring for
the children and all had a focus on how their area could make the experience
positive and fun for the kids. I left that
day thinking this is going to be a truly great center keeping with the high
expectations one expects from Mayo clinic.
Besides having some of the top pediatric experts in the world – they have
people that care enough to ask and listen. Special thanks to Becky and Shari for making
my trip a wonderful and memorable experience!
