Senator Kennedy and Proton Treatment

Pediatric Proton Foundation Responds to NPR Commentary on Senator Kennedy’s Proton Therapy Treatment (September 1, 2009)

I am miffed that once again proton treatment is in the news and being cast in a negative light along with Senator’s Kennedy’s death. Somehow naysayers have twisted a story saying Senator Kennedy’s proton treatment for his brain cancer was unwarranted and experimental. If you were a legendary Senator and bore the name Kennedy, would you not seek out the best treatment available to try to treat your deadly cancer? Of course you would and that is what the late Senator Kennedy did. Senator Kennedy was known for his compelling stance on healthcare issues. Of course, first he selected one of the top neurosurgeons at Duke then he selected the best radiation treatment available in the U.S.: proton treatment.

The physicians at Harvard are considered top experts in their field and are recognized around the world for their superior cancer programs. His doctor team determined together with their patient, Senator Kennedy, to treat his cancer with protons as they considered it the best medical option they could provide under the Senator's severe circumstances. From what has been reported, Senator Kennedy's tumor was among the most aggressive and fatal types of cancer. For him to have survived 15 months from diagnosis and remain a vibrant participant in his work is actually quite remarkable. Most glioma patients at Senator Kennedy’s age (76) are lucky to live another 6-12 months. There is no doubt that proton therapy achieved the goals of his physicians: minimal side effects during and after treatment and more quality days for him and his family.

The same choice is needed for all cancer patients – not just the affluent and easily recognized. The same choice is needed for all pediatric cancers. Harvard has released many new studies that show the chance for secondary cancer is reduced up to 50% when protons are used on children versus traditional radiation. Children are still growing. They are highly susceptible to deficit late effects from radiation hitting non-tumor healthy tissue especially in the brain. The dose to healthy tissue is minimized with protons. Senator Kennedy knew this information and that’s why he got it. Now let’s help our kids get it too.

Susan Ralston
Executive Director& Founder
Pediatric Proton Foundation
www.pediatricprotonfoundation.org

Protons and Children: September is Childhood Cancer Awareness Month

I was talking to a friend of mine and we were discussing how many children have actually received proton treatment as part of their protocol in the United States. I suggested to her that there were around 1,000 pediatric patients treated here. She said last year? I said no, I mean since it started in 1990!!! You have many, many of the experts saying it is undisputable that protons should be used versus photons with children because of secondary tumors, and because of the deficit effects of radiation on healthy tissues in children. Yet how can it be there have only been 1,000 kids treated in the last twenty years??? This is why I started the Pediatric Proton Foundation.

Here is how I come to my estimate:

It seems it is agreed Boston, by far, treats the most pediatric patients. They published they had treated 320 pediatric cancer patients from a total of 3,515 or 9.1% of patients. Let's assume then the other centers treat approximately half that or 4.5%.

Boston = 320 peds self reported
LL 13,500 = 607 peds
Florida 998 = 44 peds
Indiana 632 = 28 peds
MDA 1000= 45 peds

That equals a grand total of 1044 peds. This has to change. I am going to try to help make it change with your help.

September is childhood cancer awareness month. The following video is a tribute to our young warriors.

September is Childhood Cancer Awareness Month - Time to Demand Protons!

September is childhood cancer awareness month and I found this video that captures the emotion of being a Mom with a cancer child.

www.youtube.com/watch?v=TEg1a8plJq4